Pectus patient information website has improved access to care and patient reported outcomes
نویسندگان
چکیده
منابع مشابه
Pectus patient information website has improved access to care and patient reported outcomes
BACKGROUND Pectus is the most common congenital disorder. Awareness amongst primary care physicians and the general public is poor. NHS commissioning bodies plan to withdraw funding for this surgery because they deem a lack of sufficient evidence of benefit. The purpose of this study is to assess the effects of introducing a patient information website on referral and activity patterns and on p...
متن کاملPatient-Reported Outcomes, Patient-Reported Information
Internet communication is developing. Social networking sites enable patients to publish and receive communications very easily. Many stakeholders, including patients, are using these media to find new ways to make sense of diseases, to find and discuss treatments, and to give support to patients and their caregivers. We argue for a new definition of patient-reported information (PRI), which di...
متن کاملThe future of measuring patient-reported outcomes in rheumatology: Patient-Reported Outcomes Measurement Information System (PROMIS).
The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS; trademarked by the National Institutes of Health) Roadmap initiative (available at www.nihpromis.org) is a cooperative research program designed to develop, evaluate, and standardize item banks to measure patient-reported outcomes across different medical conditions as well as the US population (...
متن کاملUsing Patient Reported Outcomes To Improve Health Care
using patient-reported information to improve health using patient reported outcomes to improve health care using patient reported outcomes to improve health care learning health systems: using patient-reported outcomes using patient reported outcome measures to improve patient using proms to improve quality: clinical management of using patient centered outcomes research to improve care using ...
متن کاملPatient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs)
In recent years, there has been an increased focus on placing patients at the center of health care research and evaluating clinical care in order to improve their experience and ensure that research is both robust and of maximum value for the use of medicinal products, therapy, or health services. This paper provides an overview of patients' involvement in clinical research and service evaluat...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: Journal of Cardiothoracic Surgery
سال: 2016
ISSN: 1749-8090
DOI: 10.1186/s13019-016-0470-7